Welcome to my website! My name is Carol Welsh and I'm a thirteen year survivor of an adult ependymoma, a rare brain tumor. I've had three brain surgeries, one gamma knife radiosurgery, a placement of a shunt, a course of radiation and oral chemotherapy called Temodar which did not stop the growth of my tumor. On March 22, 2005 I started a different "heavy duty" chemotherapy regimen, a combination of IV carboplatin and IV etoposide (VP-16). I completed three more rounds of the chemo (April 12-14, May 7-9 and May 28-30) to buy some time while I investigated the possibility of a third surgery, which I eventually had on December 13, 2005. With the recurrent tumor I had headaches, balance problems and severe double vision. In fact, I had so many physical complaints that I was overwhelmed. For over eleven months I took a daily dose of Decadron which has its pros and cons - it is a vital steroid to control edema (swelling) around a brain tumor but it has horrible side effects. Since my third surgery I have struggled to both accept and overcome my deficits.
|From another race. Carol is in the white jacket/yellow shirt|